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What We Do


Hong Kong Hereditary Breast Cancer Family Registry

Established in 2007, Hong Kong Hereditary Breast Cancer Family Registry (hereinafter called "The Registry") is a non-government charity organization dedicated to support the high risk breast cancer programme (HRBCP) in providing free access of genetic screening and consultation for the underprivileged, high-risk breast , ovarian and Prostate cancer patients and their families. The aim of The Registry is to advance and standardize clinical care for this high risk cancer group, in particular of the younger pre-menopausal age group, by formulating preventative measures through data collection, research, public education, counseling and supportive care services in Hong Kong.

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Although cancer cure remains elusive, new approaches to prevention, early diagnosis and treatment are making the disease less devastating and more curable.

Training in genetic counseling
Genetic counseling is an important aspect of genetic test. The Registry is dedicated to support health care professionals to be trained in genetic counseling so that guidance and coping skills could be shared with high risk individuals and families.

Provide a free access to genetic screening and consultation
Genetic test results will provide useful information about an individual's cancer risk. The Registry is keen to support the underprivileged and their families in the HRBCP to undergo genetic testing for BRCA mutations with subsequent aim for intensive screening and to provide advice on preventive measures.

There is increasing data suggesting that certain clinicopathlogical and genetic features of breast cancer is ethnic specific. Research specific to Chinese/ Asia population will help improve the management of breast cancer in Asia by tailor-making it specifically to our needs. Collaborative research with international genetic registries will increase understanding of the ethnic differences in hereditary cancers.

Public Education
Through the public educational programmes, The Registry promotes and strengthens the understanding of BRCA gene mutation in the local community. Vital information leaflets are produced and distributed to the public and health care professionals on hereditary breast cancer.

Radio Interview | Professional Talks | Public Talks




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